FOUR year old Alfie Pentony was welcomed to Armagh Athletic Grounds by Kieran McGeeney, Jamie Clarke, Aidan Forker, Stefan Campbell and Vice Chairman Mickey Savage, at Armagh GAA Senior Football training before their league promotion decider against Tipperary.
The Armagh squad were delighted to meet Alfie along with his parents Colleen and Jamie who continue to fight for a cure against Duchenne Muscular Dystrophy (DMD), a cruel genetic disease that gradually wastes away muscles throughout the body. Walking ability is typically lost between the ages of eight and 12 and the sufferer confined to a wheelchair. Most victims are not expected to reach their 30th birthday and tragically many don’t reach their 20’s.
Armagh Manager Kieran McGeeney said, “We were delighted to meet Alfie, a fun loving little boy who has a rare illness that needs a cure. I admire the determination of his parents Colleen and Jamie in their fight for a cure and to raise the awareness of this illness. We were happy to support the family and do our bit to help”.
Jamie Clarke, Aidan Forker and Stefan Campbell presented a signed Armagh GAA jersey to Alfie and his parents who have embarked on a huge fundraising campaign for two charities – Muscular Dystrophy UK and their own Fight for Alfie campaign. On Saturday 8th April at 8pm the family are hosting a fundraising night in Newry Foresters. There will be a music, entertainment and a hypnotist on the night as well as an amazing raffle. Tickets for the event are £5.
Colleen Pentony said, “I would like to thank Armagh GAA, Kieran, Jamie, Aidan and Stefan for a wonderful evening and for the care and support in our quest to find a cure and raise awareness of Duchenne Muscular Dystrophy (DMD).
“We are determined to have a sum of money available in the hope that we receive a phone call telling us a new treatment is available for Alfie. If someone says there’s new treatment, but if it’s £50,000 we want to be in a position where we can go the next day. It’s irreversible once he goes into a wheelchair – every year we keep him out of the chair is a year they are closer to finding a cure”.